Thursday, April 5, 2012

Heading Home

We will be heading home tomorrow.  The doctors ordered all of the labs and tests they can at this time.  We will be coming back in the next month or so for a liver biospy and the other test they want to do.  The other test is some type of special scope that goes into the bilary ducts of the liver and there are only two doctors here that do this test.  So it is not something that can be scheduled quickly.  We will get home and look at calendars and figure out when will be the best time to come back.  The good news was no aneurysms, however the test did show a mild malformation of the brain stem.  The nephrologist is going to consult with a neuro surgeon to see if we need to do anything about this.  They did say this could be the culprit of all the headaches she has had for years.  While they await our return for the biopsy, the nephrologist, liver doctor and geneticist will be researching a list of diseases they would like to check Mattie for.  They are still gathering information.  It looks like we might be back more frequently while they try to figure this out.  They did tell us it could take along time or we still may never know.  We are okay because at least they are trying.  They are realizing what we already knew, God trully broke the mold when He made Mattie.  She has had a great attitutude and has been a great patient all week. I'm so proud of her!  We are all ready to get home and see our Mickey as we are very seldom apart.  We all are so ready to see her.  We will continue to update as some of the test results come in.  Some of the blood work they did takes two to three weeks to process.  It will not be a quick process by any means, but again we have a group of doctors that are working together and diligently researching all possible avenues.  God answers prayers and remember He is good ALL the time, no matter the circumstance.  Thanks for the prayers please keep them coming they are definitely working!

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