Not feeling well again

Well I have been feeling great since Friday and it hit me again this morning.  I had to miss school today and went to the doctor for my monthly labs and another check up.  Please say a prayer that I will feel so much better when I wake up in the morning.  The doctors here won't do anything anymore, but they are so glad, as am I, that Cincinnati is right around the corner.  Remember God is good ALL the time.  Please continue to pray for healing and answers!

We Have Dates!

This has been an exciting week!  Mom just heard from Rhonda at Cincinnati and she has me scheduled to see doctors from April 2 - April 5.  This is tentative as each doctor's office has to confirm the appointment, but Rhonda doesn't think there will be any problems. 

It has also been exciting because people are starting to buy my green bracelets and my mom's work the MS Supreme Court started a love offering for me this week to help with my travel and medical expenses.  It is wonderful when God uses other people to bless us.  Thank you to everyone.  Please continue to pray for healing and answers! 

Green Bracelets!

I'm so excited because my Aunt Betty ordered reminder bracelets to sale to help raise money for my trip to Cincinnati.  They are green and say supporting Maddie's smile.  I love the fact that they are green because St. Patrick's day is coming soon and that is my kidney transplant anniversary.  March 17th will make 9 years since my transplant.  Green is also the donor color!  I hope to see green bracelets everywhere because I know people are praying for my healing!  God is good ALL the time! 

Waiting for appointments!

We have finally made it through the referral process and should possibly know dates next week.  My scheduler's name is Rhonda and I think we should pray for her as she has to try to coordinate all my appointments.  She said she will call Mom by next Tuesday or Wednesday hopefully with dates.  The referral process took a little long, but now all we are waiting on is dates.  Please continue to pray for me as I have my good days and bad days.  I will try to continue to smile through it!  Thanks for your prayers!

Prayers Needed

I'm happy to say I made it through a whole week of school last week, but I'm not having a good week this week.  Please pray for healing for me.  I was not feeling well again yesterday so mom took me to the doctor and they said it's the same old thing.  There is basically nothing they can do for me at this point and the doctors are very anxious for me to get to Cincinnati as they think a fresh pair of eyes looking at all of my many records will help us get to the bottom of what I have.  We should have dates this week.  We are just waiting on referrals.  Thanks for all your prayers!  Will update as soon as we have a date.

Cincinnati Called

The Hepatologist coordinator called today and said they would be getting the Concierge service to call because I will need to see about 5 doctors (Liver, GI, Kidney, ENT & Genetics).  The Concierge service called Mom within 10 minutes of hanging up with the coordinator. They are now starting the referral process and said they think I should be able to come visit them by mid to late March.  The schedulers will call next with appointment times.  They said I should be there about 5 days unless they need to do procedures and then we might be a little longer if they do.  The good news for now is until they decide what tests they need to do, I will get to be out patient so I will only have to visit the hospital daily instead of living there!  She did say they may decide to admit me once I show up but for right now they are going on an out patient basis.  We should have appointment dates next week!  And another blessing is that I have been able to go to school this week.  Keep praying that I continue to feel better each day! 

Antibiotics finally!

Just got back from the doctor and finally someone gave me some antibiotics.  I've had a low grade fever and not feeling well all week.  Looks like a UTI and a sinus infection and they decided after a week some antibiotics were in order.  Hopefully, I will feel better quickly!

Hepatologist called again today and they should be getting my biopsy slides by Monday or Tuesday then we can start getting our appointments set up!  Keep praying for healing for me!

Prayer Warriors Needed

Another Hepatologist Coordinator called today to say they have to have all of my biopsy slides before othey can set an appointment.  The hospitals in New Orleans are trying to get all of them to the doctors.  Apparently if we are seeing more than two doctors we need to go through the concierge service to coordinate all the appointments.  Felt like the lady today was giving Mom the run around about what doctors we needed to see.  We know it will all work out.  Please pray my biopsy slides get there and they can all coordinate all the doctors I need to see and figure this out without lots of headache.  Also, please pray that I start to feel better.  I've had low grade fever all week and not feeling very well.  They can't do anything to help me medicine wise right now because of my liver.  Thanks for your prayers, hopefully we'll know a date or have a better idea by Friday!

Still Waiting and not feeling well

We are still waiting for our appointment dates, but please keep me in your prayers as I am not feeling well.  I found out yesterday that my cholesterol is too high now and I will need to be on a low cholesterol diet.  That should be fun.  My magnesium is also low so I have to start taking magnesium again.  I wasn't able to go to school because I feel terrible and I am running a low grade fever.  They can't give me any medicine right now because of my liver function, so please pray God just heals me and I won't need any antibiotics to get well.  I will keep you posted, hopefully we will have our date this week.http://www.mattiessmiles.blogspot.com/

Busy Busy Coordinating!

We just received a call from the hepatologist coordinator in Cincinnati.  She is in the process of getting us a specific date as now they realize we are going to need to see many doctors.  We will be seeing a neprhologist, hepatologist, ent, and geneticist...that we know of!  Pray that all my records get there so they can have all the information about me which is alot considering it's been building for 9 years! 

All OnBoard

I had a long day today in New Orleans at Children's Hospital for my 9 year kidney check-up. The kidney looks good and other things are some better. The best thing of today was that all my doctors who have seen me there are all "On Board" to work with Cinncinatti doctors to try to find out what is going on with me. This is great news because now the doctors will know my whole medical history without having to repeat lots of information. Nine years of medical stuff is a lot of information. I also met Jadon today who is in the hospital fighting a bacterial infection. He is a strong little boy. I know exactly how he feels. I hate being poked and bothered when I don't feel good so maybe in a few months I'll have some answers. Thanks for praying for me and please remember Jadon in your prayers too!!

Quick, Wonderful news!!!!
Today I heard from Cinncinati and they have accepted my case. I had a date of March 2nd, but there is another doctor that I have to see so they may have to reschedule my date, but I am going!!!! I'll keep you updated, but please start to pray that everything will work out and the doctors will be able to give me some answers. I know God has something great waiting for me!!!