Dates Confirmed will be heading back in May

Dates are confirmed, we will be heading back to Cincinnati on May 23 for labs, and liver biopsy and scope that goes into the ducts of the liver on May 24.  They will keep Mattie in the hospital over night and then we will have to stay locally one more night and then head home.  They are also trying to set up an appointment with the neurosurgeon while we are there.  Their next available appointment is in August, but they said because she will be in the hospital, they may be able to do an in hospital consult.  Please pray specifically the neurosurgeon will be able to do an in hospital consult or schedule an appointment for that week so we don't have to wait until August to see him. 

Please also remember her family and friends are working really hard to put together the Jambalaya Dinner fundraiser for Monday, May 7 in Richland to help with travel and medical expenses. It will be much easier on Maddie to fly after having the scope and biopsy instead of driving for 12 hours.  You can contact Tina at 601-941-7531 for tickets or email me at peters68@bellsouth.net.  Thanks for all your love and support.

Remember God is good ALL the time and Prayers are our MOST IMPORTANT contribution.

Waiting on Confirmation of dates!

Sorry we haven't posted in a while.  Maddie has been sick this week with a nasty cold and inflammation of the chest wall and sternum.  That kid gets the strangest things!  She does seem to feel a little better today. 

We are waiting on insurance confirmation to go back on May 24 for a liver biopsy and some type of scope that goes into the liver. We are also waiting to see if the Neurosugeon wants to see her while we are there.  According to his nurse Maddie's file is on his desk waiting for insurance approval based on medical necessity and it is definite that he will want to see her.  However, they are 8 - 10 weeks out scheduling their appointments.  So please add that he will be able to see her when we are there in May to your prayer list. 

We have friends and family that are setting up a Jambalaya benefit dinner to help raise funds for our frequent trips and medical expenses.  It will be on Monday, May 7.  If you are interested in buying or helping sale tickets, let me know!

Remember to continue to pray for answers and healing and most importantly remember that God is good ALL the time!

We made it home!

We made it home late Friday night and were so glad to be home.  We had a wonderful Easter weekend and enjoyed being home to celebrate our Risen Savior!  Please pray for Mattie as we wait for results to come in from labs and start the scheduling process over again.  We are going to try to go back towards the end of May as we are blessed to have our oldest daughter, Michaela graduating from high school mid May. 

I know this week will be tough on Mattie as she has to go back to school and be faced with catching up on everything she's missed.  Which will be difficult considering she was already behind from being out sick.  Please pray for her specifically this week to be able to catch up and to feel well.  Thanks again for all of your continued prayers and support.  It is trully felt by our entire family!

Heading Home

We will be heading home tomorrow.  The doctors ordered all of the labs and tests they can at this time.  We will be coming back in the next month or so for a liver biospy and the other test they want to do.  The other test is some type of special scope that goes into the bilary ducts of the liver and there are only two doctors here that do this test.  So it is not something that can be scheduled quickly.  We will get home and look at calendars and figure out when will be the best time to come back.  The good news was no aneurysms, however the test did show a mild malformation of the brain stem.  The nephrologist is going to consult with a neuro surgeon to see if we need to do anything about this.  They did say this could be the culprit of all the headaches she has had for years.  While they await our return for the biopsy, the nephrologist, liver doctor and geneticist will be researching a list of diseases they would like to check Mattie for.  They are still gathering information.  It looks like we might be back more frequently while they try to figure this out.  They did tell us it could take along time or we still may never know.  We are okay because at least they are trying.  They are realizing what we already knew, God trully broke the mold when He made Mattie.  She has had a great attitutude and has been a great patient all week. I'm so proud of her!  We are all ready to get home and see our Mickey as we are very seldom apart.  We all are so ready to see her.  We will continue to update as some of the test results come in.  Some of the blood work they did takes two to three weeks to process.  It will not be a quick process by any means, but again we have a group of doctors that are working together and diligently researching all possible avenues.  God answers prayers and remember He is good ALL the time, no matter the circumstance.  Thanks for the prayers please keep them coming they are definitely working!

Productive Day

The day started later today but wound up being a long day.  Just getting in for the night.  Mattie had an ultrasound of the abdomen, a visit with the liver doctor then a test to rule out aneurysms.  The liver doctor has decided to start from a clean slate instead of working backwards. Her autoimmune marker was positive this time indicating she does have an autoimmune disease.  We ran into the nephrologist today again and he has been researching certain diseases.  He will get with the liver doctor and see what they can come up with.  They are going to try to schedule a liver biopsy and a scope that goes into the biliary ducts of the liver for Monday, but they said it is not likely to get it scheduled that quickly and we will probably have to go home and come back.  We will see the geneticist in the morning at 9 and then have a bone density scan at 12.  After that, we have to wait and see if they are going to be able to schedule the test or come home.  Will update again tomorrow.  Continued prayers for answers and wisdom for the doctors as they are trying really hard to come up with answers.

Nephrology & GI Appts went great!

We had our appt this morning with the Nephrologist.  He was so kind and full of knowledge.  He knew one of our doctors from New Orleans.  He listened to everything very carefully and has a few things in mind that he is researching.  He wants to do some test to rule out some issues.  They are going to possibly do a bone density scan and a MRV to make sure she doesn't have an aneurysm.  We have to call back in the morning and see if we are going to do these test before or after we see the liver doctor.  Also, he was going to meet with his other doctors this afternoon and they were going to discuss Mattie.  He said they would work closely with the GI doctor and the geneticist.  Great finally people working together!  His face lit up like a kid in a candy store when he found out which liver doctor we were seeing.  He said we get to see the head of the liver dept and he is the best in the country.  Pray for great details and answers tomorrow. 

On a not so great note, Mattie has to have an ultrasound tomorrow.  She can't eat after 6 in the morning.  So she is going to be a hungry girl...considering she hasn't been eating much it shouldn't be too hard! 

God is good ALL the time.  Thanks o much for your prayers!  Keep them coming.

Finally arrived and first appt done

We finally arrived after a two day long trip.  The trip was supposed to take about 11 hours but it was much longer!  We went through two hail storms and lots of stop and go traffic...but God is good ALL the time because we arrived safely.

Today was our first appointment with the ENT.  This was just an extra appointment to make sure my sinuses were all good since I've had so many problems in the past.  The ENT said my sinuses looked beautiful and he didn't think my nasal polyps were related to my other problems.  I'm supposed to continue irrigating and that should help keep me well. 

The hospital was kind enough to give us tickets to the zoo so I get to go see my relative's today  (just kidding)  Thanks so much for all of your prayers.  Keep them coming because tomorrow will be a long tough day with appointments and lots of information. 

Love you all!