Sorry I haven't posted in a while. Mattie has been sick for over a month. The nuerosurgeon appointment went well. He is going to monitor her on a yearly basis and check the cyst in the brain and the chiari to make sure there are no changes.
She has been suffering with itching and bladder/kidney infections for over month. She was in the hospital as the only way they could give relief from the itching was to give her steroids and benedryl through IV. While she was in the hospital a very nasty case of cystitis appeared so they gave her 6 bags of antibiotics through the IV and sent her home on 14 days of anitibiotics. She appeared to be getting better and then it came right back. It is very strange in that one day she can be well and the next day she is sick again. The doctors say everything is systemic from the auto immune disease. We went for a check up in New Orleans yesterday and her kidney numbers were not good. We have to repeat labs on Monday. If they are still too high, the doctor said he will need to do a kidney biopsy and a bladder scope to see what is going on. In 9 years, we've only had elevated kidney numbers one other time and they said it was from a virus. The numbers went right back down and everything was okay. This kidney has been very good to Mattie and we want to keep it that way. Please pray that maybe this is a virus or dehydration issue and her numbers will be normal Monday. She is having a very hard time getting well this time. She normally has little set backs that last a few days to a week, but this one is wearing her out.
The problems they face in treating her are what they would normally give a kidney transplant patient or a liver patient they can't give to Mattie because she has kidney and liver problems. She is getting tired of being sick and ready to start school on Tuesday. We had a long talk on the way home from New Orleans last night that God won't give her anything she can't handle. This is sometimes hard for a 14 year old to grasp, but she understands. She craves to be normal. I told her this is our normal and we will continue to see the blessings along the way. Please pray this is a dehydration issue and not a kidney issue. We will be drinking lots and lots this weekend and praying. Thanks as always to all of our prayer warriors! Remember God is Good ALL the time! Keep the prayers coming.
